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getting pregnant may not be an American right, but feeling better is.
July 28, 2009

Sit right down folks because I’m about to get all TMI on you (seriously, again.)

I have found that going through this kerfuffle to make moosh 2.0 has been a blessing in disguise.

I was so focused on getting that baby in me and getting it out of me that I failed to realize just how messed up my body had become. I ignored screaming signs and symptoms that something really was wrong, infertility was just a side effect and the only thing that opened my eyes to just how out of control my insides were.

When I was pregnant in the beginning, barfing over a dozen times a day, I figured “this is morning sickness, this is what so many people talk about, why there is an entire stereotype around it.”

Barfing 12 times a day is NOT normal. But I didn’t want to look like a complainer for mentioning it to anyone else.

For the last 12 years (gah, 12 years) I figured it was perfectly normal to double over in cramps each month, take vicodin for them and miss days of work due to crippling pain associated with my period. All those Midol commercials must have been talking about what I was going through, I was just a wimp and needed prescription drugs and a day off to make it through.

WRONG.

I spent all of BlogHer on my period. (TMI ALERT TMI ALERT) It wasn’t just a pretend period either. It was a burn through super tampons and overnight pad in less that four hours period.

I didn’t feel a thing.

Not a cramp.

Not a twinge.

Not an ache.

You have no idea how pissed I am that I spent one week every month for pretty much the last decade in pain, no one ever even suggested endometriosis as a possibility. I’m pissed that I never spoke up for myself and said “YOU KNOW WHAT DOCTOR? MY PERIOD HURTS REALLY BAD AND I’M SICK OF IT. SOMETHING IS WRONG, I KNOW IT.”

I’m not going bald anymore, I sleep better, my emotions are in check, I’ve lost 9 pounds, I don’t retain water like I used to, I don’t get headaches like I used to, I don’t have constant dull stabbing pains in my abdomen, my depression is better, MY SKIN IS BETTER and SWEET NAKED ANGEL BABIES IN HEAVEN I DON’T HAVE MENSTRUAL CRAMPS ANYMORE.

Now I’m not saying that if you have the above symptoms you too can be magically healed by bellybutton sodomy. But I can say that if you chronically don’t feel good? TALK UNTIL SOMEONE LISTENS.

Being on the panel with other bloggers who write about their diseases opened my eyes, even patients who KNOW something is wrong, who KNOW what is right and best for them can back down when someone in a white coat acts as if they know our bodies better than we do.

I’m ashamed that I’m the one that said “If someone says they’re not doing well, listen.” and yet I let doctors tell me what was best for me for years, when it was me that had to live in my wonky body.

Being healthy and having control of my body for the first time in years feels spectacular.

SO THIS IS WHAT BEING A HUMAN IS SUPPOSED TO FEEL LIKE! IT DOESN’T SUCK!

Suddenly I’m not so worried about getting a baby in there, I want to see what this body can do when it’s not overproducing this, underproducing that and going bat crap crazy over there.

I angered some people when I mentioned that the follow up shots to my surgery were not being covered by my insurance. (Which they are now FTW!) While I can see how some people don’t feel infertility a valid medical concern worthy of coverage by a health plan, I hope they can understand that while my journey began to get pregnant, it has since turned into a journey to reclaim my body. To have it back in working order. Had I never gone it with the intention of getting pregnant I would have never come to where I am at today. And today? I feel good.

If $6K worth of shots will keep me in working order and preserve the benefits of a $17K surgery, why not cover them? Why run the risk of my symptoms returning resulting in more costly doctor visits and perhaps another costly surgery?

When I was pregnant my insurance refused to cover more than 21 anti emetic (anti barf my brains out) pills in a 30 day period. But they would cover my weekly trips to the ER to get IV fluids and a shot of the same anti emetic drug at five times the cost of giving me enough pills in the first place.

So many plans refuse to cover dental care. Having a $100 cleaning every six months is way cheaper than going without for five years and ending up with a $4K dental bill.

I am a firm believer that taking care of yourself is your biggest responsibility when it comes to your health. But there are times when diet, 64 ounces of water, exercise and getting enough rest aren’t enough.

This is where our healthcare system is failing so many of us.

I just want to be able to go to the doctor when chicken soup and orange juice fails me.

Not have to wait until I’m so sick that I require a hospital stay and perhaps even surgery to get better.

Is that too much to ask?

Related posts:

  1. Hi, I’m a professional not pregnant person. Nice to meet you.
  2. I see pregnant people.
  3. Ever feel like the only one who’s not pregnant?
  4. Feeling Caulky.
  5. a pregnant phone bill.

Comments off.

By Adventures In Babywearing on 07.28.09 1:09 pm | Permalink

I am SO GLAD you are feeling spectacular. You spoke so many good points here. So true.

Steph

By Jen on 07.28.09 1:14 pm | Permalink

That is SO AWESOME that you’re feeling better- I can’t imagine dealing with the pain month after month. I’ve always had relatively mild cramps, but a few times I’ve had them BAD and OMG IT WAS HORRIBLE.

I hope this means good things for you in the future for moosh 2.0 :) And hooray for feeling BETTER!

By samantha jo campen on 07.28.09 1:15 pm | Permalink

I’m teary here because it’s true. And because it’s true it’s sad.

SO GLAD things are going so much better for you! Sadly I wasn’t able to attend your panel but my room mate did and she came back with such passion and emotion while telling us all about it. She got teary again, and I got teary and GAH HERE I GO AGAIN.

Casey Reply:
July 28th, 2009 at 3:40 pm

@samantha jo campen, That makes me so glad. Best panel at blogher, yo!

By Lindy on 07.28.09 1:15 pm | Permalink

glad you’re feeling better. Hope the US sorts out its healthcare soon.

By Heather on 07.28.09 1:16 pm | Permalink

Spectacular! One of the things I find fascinating about women (myself included) is our completely backwards reasoning for finally getting checked out. I suffered from Celiac disease most of my life. Going gluten free changed everything, but I had no idea because I just get headaches and stuff doesn’t typically translate to lifelong autoimmune disorder.

I was only able to attend BlogHer last week because I listened to my body, stopped the super mom routine and went to the doctor right away when I realized something was wrong. I spent the weekend on meds, meeting people and enjoying Chicago instead of in the hospital where I would have landed had I ignored it.

By heidikins on 07.28.09 1:19 pm | Permalink

Yaaay!! I am so happy for you!!

xox

By Rick Bucich on 07.28.09 1:23 pm | Permalink

This is a seriously powerful post. I’m not usually short on words but anything I could say would seriously miss the mark on how this touches me.

Right on Steph!

By Momo Fali on 07.28.09 1:28 pm | Permalink

I could never understand why our insurance wouldn’t pay for the shots my preemies needed to prevent RSV, but would be willing to foot the bill (which would likely be in the tens of thousands)if one of them contracted the virus. Whoever is making those decisions = moron.

Casey Reply:
July 28th, 2009 at 3:41 pm

@Momo Fali, Yeah. I have stronger words than moron.

By Don Mills Diva on 07.28.09 1:35 pm | Permalink

I am sooo glad you are feeling better and so sad that we didn’t meet up in Chicago over the weekend.

Casey Reply:
July 28th, 2009 at 3:41 pm

@Don Mills Diva, Like ships in the night right?

By Jess on 07.28.09 1:40 pm | Permalink

I wanted to start clapping at the end of this. I’m a type two diabetic who lives in fear of being without insurance. I love my husband but I’m terrified to be a SAHM because what if I don’t have insurance of my own and he leaves? Health care in this country is so messed up in so many ways.

Hugs to you and I’m SO glad you’re feeling better.

Casey Reply:
July 28th, 2009 at 4:17 pm

@Jess, Duuude, yeah. Not fair. My husband doesn’t even come with good health insurance.

Jess Reply:
July 29th, 2009 at 8:40 am

@Casey, Hopefully soon he will!

By ClassyFabSarah on 07.28.09 1:44 pm | Permalink

Amen sister!!

And cheers to you for getting serious about getting healthy!!

The more you talk about your busted lady parts, the more I am realizing that I need to call the doc to talk about my own.

What’re the chances that she can fit me in by, oh, September?
I say slim to none.

By nic @mybottlesup on 07.28.09 1:45 pm | Permalink

so glad you are feeling better and taking care of YOU. for a long time, my husband and i listened to doc after doc and specialist after specialist talk bull**** to us about our son’s health… and then we took things into our own hands… really listening to PEOPLE and found what worked for US.

my wish is that you continue to do what you’re doing and for continued health.

By Della on 07.28.09 1:48 pm | Permalink

I am so thankful you had even one “right” period.

As far as I know, I don’t have endometriosis or pcos or anything actually wrong with my girly parts. My fertility and pregnancies have been unaffected. But still, I went for half a dozen years with extremely painful (GEEZ people would you PLEASE take my word for it, it’s not just “ow” and “suck it up”, even if it wasn’t vicodin-requiring), irregularly spaced periods before I finally went to my doctor and asked for some birth control. And like, poof. I didn’t have cramp-free periods, but I wasn’t having to stay home writhing on the bed for the first 6 hours each month, either. And I looked around and thought, why the HECK did I wait so long? I missed at least a half day every month of high school. GAH! So, anyway, I just wanted to say that I have my own little mirror to look in and see what’s going on over there, and I am SO glad that it’s good for you.

xoxo.

By damaris on 07.28.09 1:51 pm | Permalink

Health Insurance in this country is rediculous. I’, surprised more people aren’t ashamed of our system that doesn’t work. I’m surprised that people are against Obama’s plan. HELL-O people!!!

I’m going to have to induce my labor because my insurance ends a week before my baby is due. How messed up is that?

Casey Reply:
July 28th, 2009 at 4:18 pm

@damaris, Whoa. Yeah. That’s all I’ve got.
Whoa.

By schmutzie on 07.28.09 1:54 pm | Permalink

Here’s to good health!
I am so glad that you are feeling better.

Casey Reply:
July 28th, 2009 at 4:19 pm

@schmutzie, You of all people can appreciate good health right?

By Jen L. on 07.28.09 1:54 pm | Permalink

Excellent post. Taking care of yourself is SO important. I’ve had to learn that lesson this year, too. This whole being a grown-up thing sort of blows sometimes, huh?

By Jen (Quatro_Mama) on 07.28.09 1:58 pm | Permalink

I love when you have the TMI disclaimers…it alerts me that this is going to be a great post.
I’m not disappointed. Need to take some of this to heart and get my act together.
Big Hugs!

By Bellamomma on 07.28.09 2:12 pm | Permalink

I have many (many) issues with healthcare in our country, but most of them stem from doctors who don’t listen to their patients & or are too busy to care. I work in insurance & I understand that their is a bottom line to watch out for – but refusing coverage for necessary medications is infuriating as a patient. My ins gave me the same run around with Zofran ~ I’m on the hook for over $5,000 in home IV therapy from my last pregnancy … and yet had I gone into the hospital & been admitted for 2 or 3 days every week, they would have covered it 100% as part of the pregnancy. And I love my nurse case manager for bringing that to my attention AFTER she watched me rack up $19,000 in home health care bills. It was cheaper for them to encourage my desire to stay at home … next time? I’m checking into the hospital the first time I puke & BCBS can SUCK IT.

A good and caring doctor is worth every penny they charge. An insurance company that works with you ~ priceless!!!

By Bellamomma on 07.28.09 2:13 pm | Permalink

their, there, they’re …. apparently I’m having a problem with basic speech today!! LOL

By pgoodness on 07.28.09 2:59 pm | Permalink

So glad this has made you feel better!

And no, it’s not too much to ask, AT ALL.

By Eternal Lizdom on 07.28.09 3:09 pm | Permalink

Can I ask what kind of insurance you have? HMO or PPO?

I had a friend who had an HMO. She also had Crohn’s. There was an “experimental” drug that was approved for arthritis but not Crohn’s. The HMO wouldn’t pay for the drugs. They preferred to pay for her to be in the hospital for a month. For 3 surgeries. For week-long hospital stays every other month. Her doc eventually just started petitioning her insurance company over and over and over whenever the shot was needed.

It made no sense. But her doc had no control over her care. The HMO did. Even if she had been yelling and screaming that something wasn’t right… it wouldn’t have mattered because the HMO had complete control over decision making for her health, her body.

Casey Reply:
July 28th, 2009 at 9:17 pm

@Eternal Lizdom, I have insurance that caves when I cry and/or get angry. So that’s good right?

By Emily K on 07.28.09 3:18 pm | Permalink

This was a fantastic blog and so on-point. Fertility is a health concern, regardless of whether or not you are trying to get pregnant. All of the hormones in our bodies work together to keep us healthy – and so many hormones come from our reproductive organs!

Right on, Casey.

By Shana on 07.28.09 3:22 pm | Permalink

I am equally thrilled that you are feeling healthy and clear-headed. I am glad that you are liberated from your blog ads. As a reader, let me tell you that I enjoy your site layout because your ad space wasn’t intrusive or flashy or annoying. It doesn’t look much different to me. I just worry though, did you earn money from those ads, how are you going to make a living now?! I’m panicked down here in FL, Casey. PANICKED.

Casey Reply:
July 28th, 2009 at 4:20 pm

@Shana, Yeah. We’re pretty much going to have to proclaim bankruptcy without those ads.
Shame really.

By Amy on 07.28.09 3:37 pm | Permalink

Can I ask if they think your endometriosis and hyperemesis are related? I have both also and wondered if there is a link…

Casey Reply:
July 28th, 2009 at 4:21 pm

@Amy, I’ve never been pregnant twice to tell you if there’s even a possibility.
I’ve never heard of it though. And I have a lot of endo/HG friends that didn’t have to go through both.

By Heidi on 07.28.09 3:45 pm | Permalink

I totally agree! With every sentiment! I had tons of unexplained bleeding. Every fertility specialist I saw – every single one – said it was fine. Finally, when I basically cried about it to my ob/gyn he told me what he thought was wrong. And he was right. It is very empowering to be heard, and it is even more spectacular when someone hears you AND fixes things! Glad you’re on the road to being fixed!

By Tice on 07.28.09 3:49 pm | Permalink

Amen and hallelujah to that.

By Aurelie on 07.28.09 4:10 pm | Permalink

When I was pregnant with my twins, I went into preterm labor, and didn’t know it, even though everybody says, “oh you’ll know.” (which is whole other story) I distinctly remember telling my doctor, “No lady, you don’t understand. This can’t be labor, I’ve had cramps with my period that hurt WAY more than this my whole life.”
Ding! First, I was in labor. Second, not everybody has to take loratab to survive their cycle!?! It wasn’t until after my pregancy that I realized that I should have done something a LOT earlier. Congratulations on having a painfree flow! It’s it a strange concept.

Casey Reply:
July 28th, 2009 at 4:21 pm

@Aurelie, Yeah. Strange that we should be stoked about not being doubled over in pain right?

By kat on 07.28.09 4:14 pm | Permalink

Amen and Amen!

By Avitable on 07.28.09 4:31 pm | Permalink

I’ve always had a pain-free period, and I feel blessed as a result.

Casey Reply:
July 28th, 2009 at 9:18 pm

@Avitable, shutupnooneaskedyoustupidboy.

By Wilma Ham on 07.28.09 5:42 pm | Permalink

I am with Kat, amen, amen.
I had to endure dismissive comments at school from male teachers when I had to leave class because of these horrendus peridos pain. Even the male doctor said to get over it and it would get better after pregnancies!!!!!
Having a voice via blogging, superb.

By Rebecca (Ramblings by Reba) on 07.28.09 5:48 pm | Permalink

CHEERING wildly! Yay!

(I totally agree, if that wasn’t clear.)

By Jen on 07.28.09 5:51 pm | Permalink

It PISSES ME OFF that someone told you that you shouldn’t have your shots covered and that health insurance shouldn’t cover infertility. Wtf? Like you asked to have fertility problems? Nothing you did caused that and it’s not your fault. Ugh. People!

Casey Reply:
July 28th, 2009 at 9:19 pm

@Jen, This is why I blog.

By Melanie on 07.28.09 6:10 pm | Permalink

I am so happy for you Casey. I am so glad you have relief now at long last!

I have a story to share in the same vein… My mom spent 4 years trying to tell her doctors that something was wrong but none of them found anything. The second to last actually tried to send her to a shrink because he thought it was all in her head! On her bajillionth opinion visit, they found out she has Chiari malformation, a serious brain malformation requiring surgery. Four years it took them to find it, and the doc who found it saw it on her original MRI. Four years during which the disease caused permanent nerve damage and debilitating pain.

Never, ever take their word for it if you think something is wrong. You know your body, they do not.

By WM on 07.28.09 7:05 pm | Permalink

I am so a propenent for speaking up for yourself. It’s YOUR health. Doctors do not know it all. I learned that the hard way after I let a healthcare professional…well 2 in fact talk me out of the fact that my son had not swallowed quarters.
When in fact he had. Poor little things didn’t have to endure 5 days of misery had we insisted they do an x-ray!
Hard way to learn but lesson learned for sure.

Insurance is a whole other story…but I’m hopeful we will get where we need to be w/new administration

By Jennifer A on 07.28.09 7:06 pm | Permalink

What I think totally sucks is they give you a drug to fix one problem and it gives you another. I have horrific periods, but no one can agree if I have endometriosis or not. I went on birth control pills at 19 and my life was WONDERFUL. For YEARS! Now I have to be off them due to horrific migraines. So either no cramps and disabling migraines or no migraines and disabling cramps. So I can empathize and it was wonderful to hear you speak at BlogHer.

Casey Reply:
July 28th, 2009 at 9:20 pm

@Jennifer A, I’d like a pill that makes me really really pretty with a side effect of really skinny.
Just sayin’.

By WM on 07.28.09 7:06 pm | Permalink

Oh Oh and so glad you’re feeling healthy

DUh , can believe i forgot that.

Casey Reply:
July 28th, 2009 at 9:20 pm

@WM, Heh. Easily forgotten. I forget sometimes.

By Vickie on 07.28.09 7:54 pm | Permalink

I had to take my daughter to an ER for an ear infection once because my insurance wouldn’t let me see anyone but my primary care physician and they couldn’t squeeze me in for a few days. It would have been cheaper for the insurance company to just let me take her to another pediatrician – but alas insurance companies are all goofy!
Glad you’re feeling better.

Casey Reply:
July 28th, 2009 at 9:21 pm

@Vickie, I have stronger words than goofy.

By gorillabuns on 07.28.09 8:14 pm | Permalink

here’s to feeling better and reclaiming your body! and oh, getting pregnant.:)

By Chris on 07.28.09 8:35 pm | Permalink

So well said. It took me over a year of being in constant, unending, unbearable pain to find a doctor who would even listen. Almost 20 years later I still live with it everyday, but at least because I didn’t give up I know:
a) I’m not crazy
b) it has a name and it’s real
c) I’m not the only one.
And most importantly, if the doctor doesn’t believe something is wrong–they aren’t in your body–find a new doctor.

So very glad you’re feeling better! What a great and impassioned post.

By DesignHER Momma on 07.28.09 8:45 pm | Permalink

and I can comment as your BlogHer roomie, I would have never known you were on your period.

But I knew, because you were always bragging to me on HOW ABSOLUTELY FANTASTIC YOU WERE FEELING! NO CRAMPS! NO HEADACHES!

I’ll listen to that all day long…

Casey Reply:
July 28th, 2009 at 9:21 pm

@DesignHER Momma, I just LOLed.
I don’t LOL easily.

By Rachel on 07.28.09 8:45 pm | Permalink

I totally get it. With diabetes, sometimes it seems that health insurance would rather there be complications than cover things like insulin pumps and CGMS (like Kerri fought for) to help blood sugar control. Heck, test strips to poke our fingers are outrageous. It raises one big WTF.

Casey Reply:
July 28th, 2009 at 9:24 pm

@Rachel, Pardon my whatever but STUPID. *ahem*

By Diana Lee on 07.28.09 9:33 pm | Permalink

Please don’t be ashamed, Casey. If there is one thing all of us have in common despite our illnesses being different it is having the experience of having your symptoms blown off over and over again. It took me six effing years to get my excruciating neck pain diagnosed. Shazzam, medical profession.

By Rhi on 07.28.09 11:24 pm | Permalink

So… will we be meeting LupronCasey soon? Former LupronRhi is sad she didn’t have someone to go through that crap with.

(also, SAD I didn’t meet you at BlogHer. BOO!)

By Amanda of Shamelessly Sassy on 07.29.09 12:32 am | Permalink

Every month my period cramps feel like contractions. Weird things are happening to my body. I think I’ll make the gyno appointment that I’ve been avoiding for the past 3 years because no my no-insurance-having, somewhat-cheap butt has been avoiding it. There’s no way it’s normal to have contraction level of pain cramps. Must call doctor.

By Dugi on 07.29.09 1:23 am | Permalink

ahh I feel u. if only doctors listened to us when we tell them. bloody doctors..can’t live with them…can’t live without them. maybe i should have gone to med school instead of law school…just maybe. :/

Casey Reply:
July 29th, 2009 at 9:09 am

@Dugi, I’m wishing I had a doctor on the side. Makes the idea of the commune even better.

By Joe @ Irrational Dad on 07.29.09 6:31 am | Permalink

Glad you’re doing well (or better, at least). Still thinking baby thoughts for you up in the Fort Wayne area.

By Amanda Wilmering on 07.29.09 9:22 am | Permalink

I TOTALLY understand. I felt the same way about my cramps pre surgery and was blown away that having a period could hurt so little! My first doctor that I talked to about my crazy periods and pains blew me off and made me feel like a jerk, I should have gone to an expert sooner or she should have learned that we aren’t all just wimps! She almost made me lose my ovary, gah!

By Halala Mama on 07.29.09 10:54 am | Permalink

I agree completely with you. Insurance companies have completely taken control away from doctors who often know what is best for their patients, like 30 pills for 30 days. In addition, women need to look for doctors who listen to them and ask the right questions so as to alert us that something might be normal as well as the fact that we need to make our problems known. The whole system really needs improvement.

By Barb @ getupandplay on 07.29.09 10:56 am | Permalink

GREAT post!! One of your best! Poignant, funny, and with a rousing call to action at the end! I am so proud that you are my friend. And I am SO HAPPY that you are feeling better!!

By Jamie on 07.29.09 10:57 am | Permalink

Good for you Casey, for reclaiming your body/health! While in college, I actually had an OB doc that said she had no problems prescribing 800mg Ibuprofen to women for cramps. Of course I never returned to her office because like you, I feel that no one should have to live in that kind of pain and if you have to “live” on meds through your period then something is WRONG!! Thanks for sharing your experiences with us.

By Mim on 07.29.09 11:03 am | Permalink

Glad you’re feeling better and thanks for the message. Something needs to be done to curtail the insurance companies’ hold over us. Not sure exactly what it is and who should oversee it, but it needs to be done.

By Angie on 07.29.09 11:18 am | Permalink

Your message can be applied to empowerment in general. So many times we think we just need to cope with the things we’re experiencing. Yet, for so many situations, there are solutions.

So glad you’re feeling better, both inside and out!

By Angi on 07.29.09 11:49 am | Permalink

Wow, Casey…I’m calling my Dr….TODAY.

By sam {temptingmama} on 07.29.09 12:26 pm | Permalink

I have MUCH stronger words for those people whom had the audacity to sit there and say that these shots shouldn’t be covered.

I am shocked, saddened and disheartened to know that some people said such hurtful things.

Makes me wonder just what they would say had it been them who suffered. How would they feel if someone they loved had said something so hurtful about them?

Sigh. Getting angry again.

An injection that gives a woman the power to conceive after infertility is a wonderful thing and SHOULD be covered. Damn right it should.

I am so glad you’re feeling better, and can hopefully get the injections to help you along the way to Moosh 2.0.

I say forget those who say otherwise, they’re obviously not worth the time and effort; because if they knew you AT ALL they would NEVER say anything of the sort.

NEVER.

I love you!

By fiona on 07.29.09 12:33 pm | Permalink

I was so incredibly ill during my three pregnancies and my meds were also not covered yet the trips to er were… I also suffered greatly after my first delivery and swore it wouldn’t happen again… I love this article and YOU are an amazing lady!

By susie on 07.29.09 2:29 pm | Permalink

Prevention is cheaper, easier, safer. Why our health care system seems to want to deal only in medical emergencies is beyond me. Great post.

By TMI, TMI, TMI « Life Under A Rock on 07.29.09 2:57 pm | Permalink

[...] was reading this post yesterday, and I thought it was so good that I sent it to one of my friends.  She and I then [...]

By Kelley on 07.29.09 4:57 pm | Permalink

My BFF had a brain tumor removed and you would NOT BELIEVE the bull**** it took her to get someone to believe her. She literally had a bolt in her head for 24 hours because her doctors refused to believe that there was something else wrong with her. She had to find a pediatric surgeon to do the surgery and is now fighting to get the follow-up she should’ve had 2 years ago. During these 2 years, she’s had to be on class 3 (level 3? whatever morphine is on) narcotics JUST to get out of bed. Forget functioning.

She’s now in a current fight to get her insurance to cover the follow-up surgery, which will be cheaper in the long run (She was once on pills that were $100 a pill and she had to take it every 4 hours).

And the bleeding thing? Yeah, I thought throwing up and OD’ing on meds every month was normal for 20 years. It’s no wonder my liver just about shut down on me. Thankfully, having the baby has curbed the cramping. Unfortunately, I’m as irregular as they come and I’m sure things still aren’t as kosher as they could be.

By a.men on 07.29.09 5:07 pm | Permalink

First let me say, I am so glad you are feeling better. You are so right about speaking up for yourself! I also found this out the hard way. I was recently diagnosed with a disease that my new doc thinks I have had for the last 23 years. It is frustrating when no one will listen and other doctors blow you off. I totally agree with you about speaking up for yourself until you find someone who will listen. I am on meds now, learning to manage this disease and feeling so much better! My insurance hasn’t covered it all either and it has been frustrating, as well!

By Mandi Bone on 07.29.09 8:55 pm | Permalink

As someone who has had 5 open heart surgries I have have dealt with far too many insurance companies. There are some that are super great and some that will have a special place in hell. I saw your adoption button. I am adoptive mama in an open adoption. If you have any questions or want to chat about adoption I would be willing to share our story with you.

By moosh in indy. » some fire, way more fizzle. on 07.29.09 9:43 pm | Permalink

[...] about/contact archives disclosure/advertising moosh in indy. ← getting pregnant may not be an American right, but feeling better is. some fire, way more fizzle. July 29, [...]

By Christina on 07.29.09 10:03 pm | Permalink

And that is what healthcare should be about: making people healthy. Too bad the insurance companies seem to miss that point far too often.

I’m glad you’re feeling so much better now, and I’m glad you’ve found the ability to stand up and demand to be listened to by your healthcare team.

(And I wish we could have spent more time together at BlogHer!)

By Lisa in TX on 07.29.09 10:10 pm | Permalink

My 3 year-old son split open his cheek on a corner of the futon frame and needed stitches, last week. We took him to the ER because the closest minor emergency/all hours & even on weekends place is actually a fancy office for a regular doctor and the vast majority of doctors WILL NOT take new patients if they’re on medicaid or state insurance. (When my daughter had pink eye on a Saturday, a couple years ago, we paid $250 to get a Rx for eye cream.) It’s dumb beyond anything that I had to wait three hours at the ER for three stitches, when if the minor emergency place had taken us we’d have been done in half an hour and not taken up the hospital’s resources. Sigh…

By Scattered Mom on 07.30.09 10:44 am | Permalink

See, it’s stories like this that make me shake my head about the American Health Care system. (I’m in Canada) When we visited the USA this summer so many people asked us SO many questions-and some thought that we were all communists that make people wait for years for surgery, and that we never get taken care of! Not true!

There’s a lot of propoganda out there that Canada’s style of health care is bad. Even we complain a little but hey, when I hear stories like yours I thank those “sweet naked angel babies in heaven” that I live here.

By Laura on 07.30.09 10:54 am | Permalink

I am so glad you are taking back your body. I had a very similar situation since I have PCOS. Infertility was a result of that condition. Now the battle is finding treatment post-infertility.

I enjoy your tweets, now I’m enjoying your blog.

By Issa on 07.30.09 11:50 am | Permalink

Insurance companies are idiots and they seem to be getting dumber every day. It’s like they know they are failing and they want to take us all down with them.

Mine won’t pay for anything, cause I’m crazy. My happy pills are not coverable, because hai, I’m crazy. So my doc labels them as sleeping pills, because I am a horrible sleeper and somehow they’ll pay for them.

By semqf on 07.30.09 10:20 pm | Permalink

I read your post a few days ago but I have been thinking about it ever since – I am SO excited by it. I had an exploratory laparascopy in Jan and they found I have stage 4 severe endo. So I went back on the waiting list and am just about due for my next op (I’m in NZ so completely different healthcare system).

Your list of symptoms that have improved since your op makes me SO happy! I can’t wait to be painfree!! And hopefully my general emotions will be more in check as well :) So glad it worked out for you and thank you so much for sharing – you give me hope! Good luck with moosh 2.0

By grandeMocha on 07.31.09 1:21 pm | Permalink

Aurelie – I went into preterm labor (29 weeks) at work and didn’t know it either. It wasn’t until I started bleeding that I knew I was in trouble. I had way more powerful cramps in HS too.

I thought they were being so over careful to make me stay in the hospital until delivery. Turns out it was $683/day for me and $2000/day for a preemie in the NICU. It was mostly about the benjamins.

By Emmy on 08.02.09 1:34 am | Permalink

I am so glad you were diagnosed and the sugery is helping your body get back to normal. I used to have really bad cramps, vomiting, etc and be non functioning for the first day of my period. My mom had me tested for endometriosis but I didn’t have it. I only senitive hormones? After my first baby my cramps changed dramatically. They are so mild sometimes I don’t take any advil. Which is saying a lot because my husband thought I was addicted when we first got married. I am so so happy your body is getting better. And I am so sorry no one suggested you get tested for endometriosis sooner. Heres to restoring the gift of Mother Eve!

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